The past two years have been incredibly tough as what seemed the rapid acceleration of my chronic pain has left me with gaping emotional and spiritual scars. To look back, I could say I was in denial but worse than that- it was like having an out of body experience but instead of being joyous and seeing myself moving towards the light- I felt almost nothing but a tinge of sadness in watching myself literally disappear.
Chronic pain makes it very stressful to make any plans because you never know if you can keep your end of the bargain. You can only cancel so many invites before the phone ceases to ring and sadly, you kind of feel relieved. Answering the phone sometimes becomes a chore because when the person on the other end inevitably asks you "how you are?" you can tell the truth and now discuss a subject that makes you scream out loud or you might choose to hesitantly reply "Not too bad." However, if the pain has you in the throes of its force and you receive an enthusiastic response, you must know find the energy to carry on the façade. THAT IS WHY I GENERALLY LET THE PHONE RING! My grandmother is typically my exception because with her, I don't need to wear any mask so it is truly a "hellish," day when I don't answer my special angel's phone call.
Both my children are gifted actors but I realize that I, their mother, had put on the biggest performance of my life just getting out of bed and carrying on is some sort of capacity during those difficult days. I was fortunate during these very bleak months to have just an hour or two of moments where I felt truly present. Chronic pain and depression now held the keys to my daily life and frankly, it was obvious they had set up house. The fog was so diminishing and hours turned into days and days into weeks until I started to truly think that "THIS" was my new norm! Looking at some of Christian and Malia's acting photos ignite a small fire inside me, I want to help them achieve their dreams and be present with them on set. I cannot give up completely!!
Becoming house-bound was my personal safety net and it took a lot for me to even want to venture out. Honestly, before chronic pain became my best friend, I never understood people who didn't leave their house. But now of course, I understand it differently as I now stand firmly in the shoes that I never wanted to wear. Personally, I don't think one ever sets out to alienate themselves from society by taking cover in their house but over time, it can make sense, it can make things easier. You don't have to pretend, you don't have to engage, you don't have to even truly "BE."
ANY TYPE OF PAIN CAN RENDER YOU HOUSEBOUND and SADLY, it's ironic that your safe haven becomes in the very same moment, your private prison cell.
So, next time, don't judge or forget to think about the person who for their own unique reasons choose to stay inside their house. Pray that one day, they will find the strength TO answer the phone, TO open the door and then, TO take a step. It is very difficult to be brave enough to face your inner voice that will sometimes rise and make you acknowledge your true loneliness.
So take that first step, if need be, let someone take your hand. THEN, take a moment until that moment turns into a day and the days turn into weeks and LIVING becomes your new norm.
I, for one, will be cheering you on!
Be kind to yourself on days that you sink into darkness but tomorrow may be brighter, always know that there can be a better day!
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